G.R.I.T Study

Getting global Rare disease Insights through Technology 

What Is the G.R.I.T Study?

The M.A.G.I.C Clinic is conducting the G.R.I.T Study using Zamplo Research to see if the Zamplo app can help patients stay engaged in their healthcare treatment, and see how the app can help Dr. Khan and other physicians treat patients. During the study, M.A.G.I.C Clinic will ask 50% of participants to use the app as they like, creating journal entries whenever they want to, and complete a few questionnaires about their experience.

First Ever Global Study to Use a Digital App for Rare Disease Management

M.A.G.I.C Clinic and Zamplo have partnered up to bring the Zamplo app to clinic patients as part of a clinical study. The M.A.G.I.C Clinic is the largest clinic within Alberta that manages Fabry disease. 

Zamplo's Role

During the study, participants will be given questionnaires about their satisfaction, how they are using the app to manage their condition, and the medical outcomes from using the app. Zamplo will be used by participants to:

  • Create Journal entries to track their symptoms, medications/supplements, activities, health data, and notes
  • Share their virtual binder with their caregivers
  • Graph their health data, symptoms and activities to analyze data and see trends
  • Generate Reports to show health care providers
  • Create Routines to help remember to track medications, treatments, symptoms, and exercise

For more information, including eligibility, click here.

Meet the research team behind the G.R.I.T Study


1-Nov-04-2021-09-09-33-09-PM

 

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  2-Nov-04-2021-09-09-50-47-PM

 

Dr. Aneal Khan

Principal Investigator

 

Desmond Koo

Clinic Coordinator

 

Elleine Allapitan

Research Coordinator

Dr. Khan has a vast background from being an Assistant Professor of Medical Genetics and Paediatrics at the University of Calgary, Alberta Children's Hospital to being a full member of the Alberta Children's Hospital Research Institute. His research is focused on rare and inherited metabolic and genetic disorders.

 

Desmond Koo holds a Master of Biomedical Technology and a Bachelor of Biomedical Sciences degree. Desmond is experienced in managing study contract and resources. For the G.R.I.T. Study, Desmond manages and coordinates technical resources to support the study team behind the scenes.​   Elleine Allapitan is the G.R.I.T. Study’s research coordinator and has years of experience as a research assistant at the University of Calgary and the M.A.G.I.C. Clinic. Elleine has a Bachelor of Science Honours degree in Psychology and a minor in Biological Sciences.

To learn more about Dr. Khan, his team, and his research, click here.

1-Nov-04-2021-09-09-33-09-PM

Dr. Aneal Khan

Principal Investigator

Dr. Khan has a vast background from being an Assistant Professor of Medical Genetics and Paediatrics at the University of Calgary, Alberta Children's Hospital to being a full member of the Alberta Children's Hospital Research Institute. His research is focused on rare and inherited metabolic and genetic disorders.

 

3-Nov-04-2021-09-10-07-35-PM

Desmond Koo

Clinic Coordinator

Desmond Koo holds a Master of Biomedical Technology and a Bachelor of Biomedical Sciences degree. Desmond is experienced in managing study contracts and resources. For the G.R.I.T. Study, Desmond manages and coordinates technical resources to support the study team behind the scenes.​

 

2-Nov-04-2021-09-09-50-47-PM

Elleine Allapitan

Research Coordinator

Elleine Allapitan is the G.R.I.T. Study’s research coordinator and has years of experience as a research assistant at the University of Calgary and the M.A.G.I.C. Clinic. Elleine has a Bachelor of Science Honours degree in Psychology and a minor in Biological Sciences.


To learn more about Dr. Khan, his team, and his research, click here.