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What Is The G.R.I.T Study?

The GRIT Study stands for Getting global Rare disease Insights through Technology. The M.A.G.I.C Clinic is conducting the first-ever global study to use a digital app for rare disease management. Using the Zamplo app, this study explores if a connected health platform can increase patients' engagement in their healthcare treatment, and see how the app can help Dr. Khan and other physicians treat patients with rare metabolic diseases. 

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During the study, M.A.G.I.C Clinic will randomly assign participants into two groups: the "App Group" and the "Placebo Group." Participants asked to use the app will create journal entries whenever they want to and will complete questionnaires about their experience. The placebo group will provide a comparison for treatment and care not using a connected health platform.

The App Group

During the study, the "App Group" will receive questionnaires regarding their satisfaction with the app, how they are using it to manage their conditions, and any medical outcomes along the process.

The Zamplo app will help participants: 

Reports

Create reports to stay organized, and easily share vital information with health care providers and caregivers

Reports

Journals

Creating journals to help track symptoms, medications, supplements, activities, and general health notes 

Journals

Graphs

Create visual graphs to help track, analyze, and discover trends in health data, symptoms, and activities 

Graphs

Routines

Create routines to help participants stay organized by tracking medication, treatments, symptoms, and exercise 

Routines

Manage Symptoms

Entries are used to help provide insight on what may trigger, worsen, or help certain symptoms 

Manage Symptoms

Improve Communication

Quick Notes can be used to keep track of questions or concerns patients may have for health care providers

Improve Communication

Meet the Researchers

Dr. Aneal Khan
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Dr. Aneal Khan

Principal Investigator

Dr. Khan has a vast background from being an Assistant Professor of Medical Genetics and Pediatrics at the University of Calgary, Alberta Children's Hospital to being a full member of the Alberta Children's Hospital Research Institute. His research is focused on rare and inherited metabolic and genetic disorders.

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Desmond Koo

Clinic Coordinator

Desmond Koo holds a Master of Biomedical Technology and a Bachelor of Biomedical Sciences degree. Desmond is experienced in managing study contracts and resources. For the GRIT Study, Desmond manages and coordinates technical resources to support the study team behind the scenes.​

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Elleine Allapitan

Research Coordinator

Elleine Allapitan is the GRIT Study’s research coordinator and has years of experience as a research assistant at the University of Calgary and the M.A.G.I.C. Clinic. Elleine has a Bachelor of Science Honours degree in Psychology and a minor in Biological Sciences.

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