What Is The G.R.I.T Study?
The GRIT Study stands for Getting global Rare disease Insights through Technology. The M.A.G.I.C Clinic is conducting the first-ever global study to use a digital app for rare disease management. Using the Zamplo app, this study explores if a connected health platform can increase patients' engagement in their healthcare treatment, and see how the app can help Dr. Khan and other physicians treat patients with rare metabolic diseases.
During the study, M.A.G.I.C Clinic will randomly assign participants into two groups: the "App Group" and the "Placebo Group." Participants asked to use the app will create journal entries whenever they want to and will complete questionnaires about their experience. The placebo group will provide a comparison for treatment and care not using a connected health platform.
The App Group
During the study, the "App Group" will receive questionnaires regarding their satisfaction with the app, how they are using it to manage their conditions, and any medical outcomes along the process.
The Zamplo app will help participants:
Meet the Researchers
Desmond Koo holds a Master of Biomedical Technology and a Bachelor of Biomedical Sciences degree. Desmond is experienced in managing study contracts and resources. For the GRIT Study, Desmond manages and coordinates technical resources to support the study team behind the scenes.
Elleine Allapitan is the GRIT Study’s research coordinator and has years of experience as a research assistant at the University of Calgary and the M.A.G.I.C. Clinic. Elleine has a Bachelor of Science Honours degree in Psychology and a minor in Biological Sciences.